Fibrous Dysplasia
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Your Personalized Treatment Plan
Do not limit your treatment options only to the nearest hospital.
We offer the most effective, quick and affordable treatment for spina bifida,
thanks to the world’s largest hospital network.
Fibrous dysplasia is a rare bone condition. It makes your body grow weaker, fibrous tissue instead of healthy bone tissue. It can also affect the shape of your bones as they grow.
Fibrous dysplasia can make your bones fragile and more susceptible to bone fractures (broken bones). It can affect any bone in your body, but most commonly affects your:
- Thigh bone (femur).
- Shin bone (tibia).
- Ribs.
- Skull (including your facial bones).
- Upper arm (humerus).
The abnormal tissue from fibrous dysplasia is almost always benign, which means it isn’t a symptom of (and doesn’t cause) cancer.
Complete Recovery
No Hidden Fees
No Waiting Lists
Leading Surgeons
Private treatment in our hospital network allows you skip waiting lists while at the same time reducing the costs treatment considerably, up to 50% cheaper, in countries that are just a short flight from home. The countries listed below make excellent choices with modern hospitals and well-trained English speaking surgeons.
Our medical consultants will advise you on the best choice for spina bifida in one of our leading hospitals. We will evaluate your current condition, expectations and other related factors, and offer you the most suitable option, respecting your health and the individual needs of your body and lifestyle. Your health is unique and so should be your solution.
- Berlin
- Zurich
- Vienna
- Paris
- Madrid
- Milan
- Warsaw
- Istanbul
Treatment of Fibrous Dysplasia
How doctors treat fibrous dysplasia depends on how severe your symptoms are. The most common fibrous dysplasia treatments include:
- Observation: You might not need any treatment other than follow-up appointments with your doctor. They’ll monitor any changes in your bone health.
- Medication: Your doctor might prescribe medication that can strengthen your bones and help prevent fractures.
- Bracing: Wearing a brace can support your bones and help them grow correctly.
- Surgery: You might need surgery if the fibrous growths are causing complications inside your body or haven’t responded to other treatments. You might need surgery if you experience a bone fracture. Some people with fibrous dysplasia need a bone graft. Your doctor or surgeon will tell you what to expect and how long it will take to recover.
Complications of Fibrous Dysplasia
Complications
Types
Causes
Symptoms
Diagnosis
Complications
The most common complication of fibrous dysplasia is making you more likely to experience a bone fracture.
If the fibrous bone tissue affects nerves around your eyes or ears, fibrous dysplasia can affect your vision or cause hearing impairment.
Types
Healthcare providers classify fibrous dysplasia based on how many of your bones it affects:
- Monostotic fibrous dysplasia affects only one bone.
- Polyostotic fibrous dysplasia affects multiple bones.
Causes
A genetic mutation causes fibrous dysplasia. Specifically, a mutation (change) on chromosome 20, one gene that’s in charge of your bone formation and growth.
Experts aren’t sure what causes the mutation that leads to fibrous dysplasia.
Symptoms
Some people with fibrous dysplasia never notice symptoms. The most common fibrous dysplasia symptoms include:
- Fatigue, especially in young children.
- Bone pain and weakness in an area around your affected bones.
- Bone fractures.
- Misshapen bones (bone deformity).
- Café au lait spots (discolored or dark patches on your skin).
- Symptoms of endocrine disorders like an overactive thyroid or early puberty.
Some fibrous dysplasia symptoms might seem unrelated to your bones. If the bones in your face are affected, you might experience:
- Nasal congestion.
- Uneven jaws.
- Bulging eyes (proptosis).
Diagnosis
A doctor will likely need a few tests to diagnose fibrous dysplasia, including:
- Imaging tests: X-rays will show the shape of your bones and any fibrous tissue. They’ll also show if your bones are fractured. You might also need an MRI (magnetic resonance imagining or a CT (computed tomography) scan.
- Lab tests: Blood tests and urine tests will show increased levels of enzymes in your blood or pee (urine), which might mean the fibrous tissue is growing in your body.
- Biopsy: Your provider might use a biopsy to remove a sample of the fibrous tissue or your healthy bone tissue for testing.
